We Need Help Raising Awareness For Neurological Disorders. Are You In?

My name is Sam. I suffer from the Neurological Disorder, Tourette Syndrome. Most human beings dont understand what a Neurological Disorder is let alone know what Tourette Syndrome is. A Neurological Disorder is a disorder caused by a mutation somewere in the brain. Most of the time the exact cause is unknown. Autism, Epilepsy, ADD (attention deficit disorder), ADHD (attention deficit hyperactive disorder), OCD (obssesive cumpulsive disorder), and Tourette Syndrome are just a small handfull of these disorders. My goal is to raise awareness so that the people asking themselfs, "What the heck is that?" can understand. So the people saying, "Oh hey, I recognize that." can have a wider perspective of what these disorerders feel like and so the people thinking, "Whatever... There all just crazy, stupid, morons." can really see that we are the same as all people. We just have to do things a little differently sometimes. In the end though, we are human, we are strong willed, and we want to feel normal but we can only do that if we are treated like we are normal. That all comes down to you.................. So what do you say. Are you in?

Friday, April 6, 2012

"Tics" hurt bad, Words hurt worse.

What does it feel like when I tic? It hurts...... I get a burning pain all through my joints, up and down my muscles, and the only way to relieve this pain is to, yes, tic. Imagine lifting a weight. Try to remember that burning feeling that you get through your arms legs and abs.  Then try to feel that relief, that "aaahhh", you get when you finally drop the weight. That feeling, the burning (x10) is what I get when I need to tic. Only imagine that burn not only through your arms and legs but in your eyes, lips, tongue, teeth, throat, stomach, toes, and even your finger and toe nails. Imagine needing to find a way to make that burning just go away. You would be surprised how limited options might be.  And the things that You do find relieve the pain don't last long and are NOT fun. It is like a matter of life or death though. Either you do something not fun or you suffer with sever burn and pain and suffer. In the end however it is almost like a sneeze. It is eventually going to come out and you holding it in is only going to make it worse when it finally cant stay in any longer.  You just wish they would some how... disappear. Though I know it wont ever do so. So instead of changing who I am so you are ok with it, I choose to make you more aware so that you will understand me more. Because in the end i cant change it, so why feel sorry for it. This is how i was made, there is no escaping the fact.  But the more you know the more people like me can sleep at night knowing that the world is trying to acknowledge our pain, see it, and is trying to do what they need to to make sure we feel ok. You are trying more to make us feel like we are normal.
                                                             ^ (or you don't care that we are different?)

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